My 2 yr old daughter has recently been diagnosed with oligoarticular arthritis?

I'm in shock, can anyone please share any experience with this. Long story but my daughter has always walked with an intermittent limp for 12 months, I took her the doctors who shrug it off and said its because she was just learning to walk. I took her to A&E 4 weeks ago as her ankle was swollen, only after they tried to take bloods she also could not straghten her arm. I was so shocked as never noticed this before, after various tests she was diagnosed with oligo arthritis, obviously this was a big shock and I feel so guilty. She had steroid injections in her joints 2 weeks ago, the consultant told me i'd be amazed with the results but although her arm is slightly straighter she still has a slight limp. She's been crying with pain in her arm the last few days but still been giving her ibuprofen. I feel like I've been left to deal with this, I have not yet had an appt to see the consultant, opthalmologist or physiotherapist. Am i being too impatient? i'm findin it hard to deal with and would love to hear any stories? The main problem I have is that there are no answers, every child is different but I worry that as she has it early it will be aggressive, i don't know if it will spread to other joints and must admit I try to keep things as normal but can't help molly coddling her. Is there any forums anyone could recommend for other this. My partner doesn't want me to as may be upset by stories but I need to know good and bad experiences. Thanks